Sunday, August 19, 2012

3 Weeks After Rowan Died

Checking in. 

It seems odd that it’s been 3 weeks since Rowan died.  In some ways it feels like it just happened, and in others it seems like he has been gone for ages.

Right now it’s like I live in two separate worlds.  “Normal life” is so incredibly different than what life with Rowan was like. Everyday we go about normal things and it seems like Rowan never existed. “Normal” things don’t remind me of him so much. I never took him grocery shopping. It was so rare that I cooked a lot when he was at home, or managed to clean the house thoroughly, or could spend time with JUST Evelyn playing games. Life before and after Rowan is so different than life with Rowan was that it sometimes seems impossible that Rowan was ever really here.

And then there are moments, where a smell, or a touching gift, or a picture, or something in the house suddenly slams reality in. Rowan was real. We loved him. Rowan died. I can’t hold him. I can’t see him. And grief seizes up, almost like a panic attack, for a short period. Sadness is just so overwhelming I find myself shaking. And it passes as quickly as it started.

It seems like the part of the journey I am working on is making these two worlds mix. I want to go about normal life never doubting that he was here. His death seeming real all the time. Grief coming and going, but not as intensely.

What helps the most? What has made me the happiest?

TALKING about him! While it seems odd to me how uncomfortable everyone seems to be with it, I LOVE talking about Rowan. I am overwhelming proud of him. He is a part of some of the best memories of my life. Who doesn’t like to talk about their kids? Yes, he died. Yes, it’s sad. But I LOVE talking about him.  When others avoid it or seem uncomfortable that I’m talking about him, it’s hard to cope with.  So this week I’m calling a grief counselor that is provided through the hospice service we used.  I get that family and friends aren’t comfortable with me talking about Rowan yet. Everyone needs time. So I’m thankful that this service is available for me.

Evelyn is doing really well.  She cries sometimes. She tells me she wishes Rowan wasn’t dead anymore. I tell her I wish that, too. We talk about Rowan’s handprint. She remembers when we made it at the hospital. She talks about Rowan’s seat in her imaginary car.  She asks me to roll down “Rowan’s window” when she wants the window on the opposite side of the car down. She likes to look at his pictures. She has fewer panic attacks every week and asks if we can go see him less and less. She misses him, like we all do, but she’s coping really well.

Doc and I had a great weekend.  We celebrated his 28th birthday with some Laser Tag and a party with several of our friends.  I won my first round of Laser Tag ever and I’m still really excited/proud of myself. Evelyn told Doc all about the remote control airplane he got for his birthday BEFORE he opened it (yay 2 year olds!). And today we went to see my grandma to celebrate her birthday.  We gave her a set of handprints (one was Rowan’s, the other Evelyn’s) to have.  I never got to take Rowan to see her, but I wanted her to have something that he had touched because she enabled us to take care of him and never worry about money, and because I know she loved him.

I hope everyone is enjoying some cooler weather. We are hanging in there. We keep stepping forward. We’re already talking about ways to honor Rowan’s memory and provide support to other kids and families battling chronic illness or disease.  He made us proud, we intend to make him proud as well.

10 comments:

  1. I am so thankful for your update. Although you do not know me, I have thought about and prayed for Rowan and your family every day since hearing your story. I think about Rowan every time I light a candle. Rowan has made me a better mother and your strength continues to inspire me. Rowan has made an impact on my life, you will all continue to be in my prayers.

    - Natalie

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  2. Ditto what the previous poster said! I'm unknown to you -- a mom in Boston who first saw your story on The Bump -- but I think about your beautiful son daily.

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  3. Same as the other two posters, you do not know me, but sweet Rowan is always thought of when a candle is lit.

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  4. Ditto...think about yall and your sweet boy and girl daily. Thank you for the update. :)

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  5. Elle,

    You brought your son into our hearts through your writing and Rowan will always be in those hearts because of you. You gave us a wonderful gift in sharing your brave and beautiful son with the world. When you were in high school, your dad and I would talk about "what is Michelle going to do?" Is she going to be a Broadway actress? Is she going to teach???? I now see what you were meant to do. I see your life's work. Being Rowan's mommy, and Evelyn's. Keep writing. Keep talking. Keep being who you are. I miss Rowan. I never even met him and I miss him and feel so blessed to have known his story. And that is because of YOU. Thinking of you all and sending lots of hugs.

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  6. Thank you, for sharing your family's story. Like other posters, I am unknown to you or your family. I'm the mother of an awesome 6 month old little boy, in TN. Words could never describe the grief I felt for your family. I first heard about you from The Bump too. I had to go back and read Rowan's whole story. I cried. I cried. I cried. I cried knowing that here I am, blessed with a healthy little boy and this poor mother had a very sick little man for a short period of time. You said at one point, that you don't want people feeling sorry for you, and I don't. But what I do feel is an ache in my heart knowing that there's a space in your's that won't be filled here on earth, but you will get Rowan again some day. No one ever wants to go through a tragic event, especially where our kids are concerned. But let me say this...I hope if I'm ever faced with anything that I can be half as strong as you've shown us all is possible. I know you had your days, and will continue to do so, but know that you're an inspiration. Just for being able to share with us all what you all went through...you're an inspiration. I too think of Rowan when I see a lit candle. God bless you, sweet Evelyn, your Husband...and Rowan who's smiling down on you all!

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  7. Elle,
    Like the other posters you do not know me, but I have followed your family's journey.
    Who I am as a mother is changed now.
    I also want to say sorry that people do not want to talk with you about Rowan right now. When i was in the Army I had a SSG who had lost her son to cancer when he was about 10 (and before I knew her) and she was trying to talk about him and tell me a story. It was obvious that this story was a percious moment for her but I was so very unsettled. I kept trying to change the subject. I didnt know how to deal with what I could only understand as her pain. I didnt want to upset her or talk about something so very sad. AGAIN it was obvious that she wanted to share this wonderful moment with me but I couldnt let her. In my mind I couldnt seperate the two. I knew what I was doing was hurtful,... I wanted to let her talk and go on, but i couldnt :C I am very sorry.

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  8. Also thank you for your deep and raw honesty!! And thank you for updating your cyber followers. I think of you and your family and am glad to know that you are adjusting as well as can be expected

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  9. Ditto to all of the other posts. You do not know me but I too have followed your journey after seeing it on The Bump. I am a mother of two wonderful boys who are three and nine months. Your family's story, your beautiful boy and your remarkable courage and strength have changed me. I have thought about and prayed for you all daily since first seeing your story and will continue to do so. I thank you for helping us all to know sweet Rowan. God rest his beautiful soul. Thank you for telling your story so honestly. The way in which you shared your emotions, so open no matter how hard you struggled. It is nothing short of incredible. You are an amazing mother. I have become a better mother because of you and your famliy's journey. Every time I light a candle I remember Rowan. That was so sweet to give your Grandmom his prints. I am sure she cherished that so very much. He may have been small but the impact he left on this world is ENORMOUS! God bless you all xoxo

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  10. Thank you for all your updates. I try to catch up when I can. I still and will continue to pray for your family and Rowan. Even though he's no longer here with us his spirit lives on and you guys will be reunited with him one day. I use Rowan's story to remind me how precious life is and to stop and enjoy the little things. I also can't help but think of him every time I light a candle which is on a daily basis in our home. Continued thoughts and blessings to you and yours.

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