Despite the fact that Rowan’s medicine for his lung pressures is a long shot, he keeps giving us reasons to be hopeful.
His oxygen saturation levels were in the 70s almost all the time at the hospital. In the last few weeks, they’ve been trending up to where he is almost always in the 79-85 range. We haven’t had to turn his oxygen up in four days. We’ve even been able to turn it down for about an hour every now and then before he starts to have problems.
He also keeps getting stronger. He did a push up yesterday. He can hold his head up for a minute at a time on his own. He likes his pacifier and is trying really hard with it. He now gets fed in chunks and has over half the day off of the feeding tube.
He’s getting so much better from what we can see and assess from the outside. We are finding more and more signs that we can be cautiously optimistic that the inside will reflect that. We’re only 11 days away from his next cath.
You're my Katniss, Michelle. You, your strength, your everything gives me hope for anything. I bet Rowan sees that too. He's such a willful little guy, I'd find it hard to believe that he doesn't.
ReplyDelete