Our son, Rowan, was born with Congenital Heart Disease and later diagnosed with Cystic Fibrosis. He had 2 open heart surgeries, 5 heart caths, and 2 additional surgeries. Realizing that despite fighting for him, Rowan was never going to get better and that he was hurting, we made the decision to change our fight from a long life, to a beautiful end to it. Hospice was a true gift and a beautiful time for our family. We said goodbye to our son when he was 7 months old.
Well, we didn’t make it out in time for the Millington Family Egg Hunt at my parent’s house – or for the trifecta of birthdays on Saturday for my sister, brother, and mother. BUT…we did make it home early enough for me to take some “really mom!?” pictures to lord over Rowan should he ever bring a girl home.
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