A Day in Rowan's Life

What was Rowan's life like in the hospital? 24/7 monitoring, 2 hour increments of care where nurses would come check on him, weighing every diaper, measuring everything that goes into his feeding tube, groups of doctors talking over him, and one place to lay.

Rowan's Days are very different now.

Rowan moves from a baby swing, to a bed, to a pad on the floor, to laying in someone's arms, to sitting in someone's lap.  He sits in different places in the room throughout the day to encourage him to look around (neck muscle work out!).

Rowan's Days Look Like This:
2AM - meds
6AM - meds, shot, respitory therapy, g-button cleaning
10AM - meds, Mom makes food for the day
sometime between 10-2 - home health visit from nurse, physical therapist, speech therapist, or occupational therapist
2PM - meds, heparin flush and IV care
3PM - work out with Mom time (tummy time, side work, neck work, sitting up practice, tracking practice, range of motion stretching)
4PM - pacifier practice and cuddle time
6PM - meds, shot, respitory therapy
8PM - change feeding tube and bag, bedtime
10PM - meds

With the exception of withdrawl issues or digestive issues (we're adjusting his stool softener dose) he actually sleeps through the night from about 8PM-6AM pretty well.  He doesn't have to wake up to eat since he is fed continuously. 

Evelyn LOVES to help with diaper changes or respitory therapy.  She likes to play with him, hold his hand, give him kisses, and show him her toys.  Infact, I just told her that a gel pillow was Rowan's and she set it on his head like a hat because she didn't want to wake him up.

Rowan's goals for the next month from a therapy standpoint are:
To take a pacifier for an extended period of time (longer than 5 minutes)
To support his own head
To roll from back to front