Rowan will be having a repeat cath in about a month.
Thursday they are putting in a semi-permanent feeding tube called a G-button so Rowan can get tube feeds without having something shoved down his throat all the time. He will also have a procedure done to prevent reflux so he isn’t at risk for aspirating.
The doctors are optimistic that the drugs are working for Rowan. They have said that his x-rays show more pulmonary vasculature (lung blood vessels) which is a good sign that they’ve opened up. One of the CT surgeons thinks Rowan may have had a mild respitory infection at the time of his cath which made his pressures higher at that given point. We’re hoping that they’re right.
Meanwhile, my husband is working ICU this month, so 12+ hour shifts, 3 call nights, 2.5 weekends. It’s hard to go from being together so we can help support each other through all the ups and downs with our son’s life to seeing each other for maybe 1 hour a day.
I will be going back up to STL for Rowan’s surgery. We will see when I come home depending on the outcome. My husband will be here with our daughter.
Waiting a month to find out if your son has a chance to live or not sucks.
I wish I were there to keep you company. We could watch touching Disney moves and just cry. I wish you safe travels back to St Louis and a safe and smooth surgery for Rowan.
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