Our son, Rowan, was born with Congenital Heart Disease and later diagnosed with Cystic Fibrosis. He had 2 open heart surgeries, 5 heart caths, and 2 additional surgeries. Realizing that despite fighting for him, Rowan was never going to get better and that he was hurting, we made the decision to change our fight from a long life, to a beautiful end to it. Hospice was a true gift and a beautiful time for our family. We said goodbye to our son when he was 7 months old.
So Rowan can’t swallow correctly. Granted, he was screaming and upset through most of the dye study he had done (from my understanding)…but basically all of the dye went straight into his lungs.
I have no idea what that means long term.
Other than lots of frustration.
Oh – and that he is now back on oxygen from inhaling lots of dye. Great.
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