So Rowan had a dye study done on Wednesday. They tried to give him Barium in a bottle (which prompted a giant panic attack from Rowan and a ton of aspiration) so all of the dye went straight to his lungs.
Good news: When they tried thicker things that were like honey or pudding, he didn’t aspirate them. So we aren’t hopeless to get him to eat by mouth, it’s just a long road.
So – after the dye study, Rowan dropped SATs and has needed oxygen off and on. This is almost definitely due to all of the Barium that he now needs to work out of his lungs. This could take several days.
While it isn’t ideal to me that he comes home needing oxygen and constant monitoring, we also know that when he is home, he gets fed on time, he gets meds on time, and he gets more frequent diaper changes because he is our only patient, while his nurses have had as many as four other kids to take care of. Plus…he’s happier. And Evelyn can’t wait for him to come home.
So our first week at home may be a little more difficult than we’d hoped, but we want to take him home anyway. He has a few tests this morning to see if we can. If not today, soon. His room is ready. I’ve (almost) caught up on cleaning and laundry. So hopefully home today!
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