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So Rowan is still sick with some sort of virus.  He hasn’t had anything other than a brief low grade fever and a need for minimal oxygen, but he definitely feels horrible.  Yesterday, any waking moment he had, he screamed.  Not like “crying loudly” like high pitched OUCH OUCH OUCH screaming.  Today, we get lots of happy smiles…then some loud screaming and whining mixed with a few screams.  So I think he’s feeling better!

We had some unexpected troubles this hospital admission.  For one, NONE of the nurses were able to give him the CF enzymes he needs.  They are hard to administer, granted.  It took me about a week to figure out how to give them correctly and get them all in.  But we had a nurse tell us that one of his night nurses just gave up and didn’t give them at all during their shift.  Not okay.

He was supposed to be transferred to a 3 to 1 level of care (three patients to one nurse) but when he was transferred, his nurse had 5 patients.  Ick.

So we felt like bringing him home, despite him still having the rash, was the best route for him.  We couldn’t be at the hospital all the time to give him his CF medications, and he definitely needs them.  We felt like at this point, he’d be happier at home, he would actually get his medicines correctly and on time, and people statistically heal faster at home than in hospitals.

So the only person who slept in our house last night was Evelyn, haha.  Rowan was horribly uncomfortable and felt obligated to let us all know about it. 

Evelyn is happy he’s home.  She keeps climbing his crib to talk to him.  He’s started playing with toys and is rolling from back to side constantly while trying to get comfy.

We expect another week or so before he is totally over the virus and another 3 weeks or so before he is “recovered” from his heart surgery and can be held in positions that are still uncomfortable for him now.  Doc goes back to work the 1st, we we’re trying to enjoy this brief time we have where we are all together.