Our son, Rowan, was born with Congenital Heart Disease and later diagnosed with Cystic Fibrosis. He had 2 open heart surgeries, 5 heart caths, and 2 additional surgeries. Realizing that despite fighting for him, Rowan was never going to get better and that he was hurting, we made the decision to change our fight from a long life, to a beautiful end to it. Hospice was a true gift and a beautiful time for our family. We said goodbye to our son when he was 7 months old.
I don’t have pictures from each day, but I have a few to give you an idea of how Rowan’s week went.
Saturday
Sunday
Monday
Tuesday
Wednesday
Rowan is still pretty sedated, but you can see that he has de-puffed and returned to a humanish color! He still has a little de-puffing to go, but he is initiating all of his breaths with less and less vent support.
He smiles a lot not. They are of course SUPER sleepy smiles…but still smiles!
He looks fantastic!!!! Go Rowan!!
ReplyDelete