What a horrible day to have technical difficulties. Blogger keeps deleting my posts.
Long story short - this is the 3rd time I've typed this, so it's the abridged version.
Surgeon talked with us. We feel that we made a really good choice in transferring. He does 20-24 Norwood procedures a year.
Rowan's Plan for Surgery Today:
Step 1: Repair Incomplete Aortic Arch http://www.pted.org/?id=interruptedarch1 (this site explains that well)
Step 2: Make sure he hole between the right and left ventricles has good flow.
Step 3: Norwood procedure (google it)
The nurse will update us each hour. Rowan could be in surgery fro 5-7 hours or even more. The surgeon will meet with us at the end of the surgery to tell us how it went. We should be able to see him an hour after that meeting.
We trust our little wolf to fight fiercely and continue to show everyone how strong he is. We trust the medical team. We trust that we made the decisions to give him his best chance. This is just another step.
Our son, Rowan, was born with Congenital Heart Disease and later diagnosed with Cystic Fibrosis. He had 2 open heart surgeries, 5 heart caths, and 2 additional surgeries. Realizing that despite fighting for him, Rowan was never going to get better and that he was hurting, we made the decision to change our fight from a long life, to a beautiful end to it. Hospice was a true gift and a beautiful time for our family. We said goodbye to our son when he was 7 months old.
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