We received word this morning that St. Louis Children's Hospital has accepted Rowan. Tomorrow a team will come by air to Tulsa Int'l Airport, and then EMSA will bring them to the hospital where they will take Rowan to the airport and then on the 2 hour flight to St. Louis. They generally send a full medical team (Dr. included) for transports and Rowan is very stable so we are not worried about the transport.
We are going home to pack tonight. We will take our daughter to her 2 year old well child check early in the morning then come back to the hospital to say "see ya in a bit" to Rowan before he leaves, then we'll go see our daughter until she goes to sleep around noon for her nap, then we'll hit the road.
Once he gets there, it will be a while before we can see him anyway.
We have made living arrangements with the Haven House in St. Louis and will have a place to stay and at least breakfast and dinner provided for us each day.
My dad will be coming to stay with us at some point as well.
We are so happy that Rowan is getting his chance. I would much rather him die fighting than have to "let him go". We are still giving him his best chance. We are still moving forward.
I have been amazingly moved by how wonderful the staff in the PICU at Saint Francis have been. The nurses, RTs, and doctors have made this entire journey here much better than it could have been. I cannot express what their compassion and kind care of our son has meant. Thank you all for always taking the time to answer any questions we had and helping us take care of our little boy.
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