Meds down.
Respirator down.
Diaper instead of catheter.
Awake, kicking, grasping.
Happy and snuggly in a blanket, sleeping.
A nice day of slow progress to end out 2011. The goals we still need to accomplish are getting him completely extubated, and teaching him to eat. These will take several days, but more days like this and I think we'll manage.
Happy New Year Rowan!
We're going to watch the fireworks over the arch from Rowan's room tonight.
Our son, Rowan, was born with Congenital Heart Disease and later diagnosed with Cystic Fibrosis. He had 2 open heart surgeries, 5 heart caths, and 2 additional surgeries. Realizing that despite fighting for him, Rowan was never going to get better and that he was hurting, we made the decision to change our fight from a long life, to a beautiful end to it. Hospice was a true gift and a beautiful time for our family. We said goodbye to our son when he was 7 months old.
I get a bit teary when I read about Rowan's progress. I'm so glad you've a nice day to end a crazy year and I hope that you get many more days like this in the coming months. Happy New Year, Fowlington's :)
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