Well, Rowan is set for being on track for recovery.
He is back to being on pressure support only (all breaths he takes on his own but there is some assistance once he starts them) for a few hours at a time. He's been on it for about 5-6 hours doing well! He also has been tolerating being fed again really well AND being on lower doses of sedation.
Let's keep slowly trucking along! Go Row Row!
Our son, Rowan, was born with Congenital Heart Disease and later diagnosed with Cystic Fibrosis. He had 2 open heart surgeries, 5 heart caths, and 2 additional surgeries. Realizing that despite fighting for him, Rowan was never going to get better and that he was hurting, we made the decision to change our fight from a long life, to a beautiful end to it. Hospice was a true gift and a beautiful time for our family. We said goodbye to our son when he was 7 months old.
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