The next few posts will all be Doc guest posts, as m'Lady is going back to Tulsa for a few days. Her grandfather is in the hospital likely for the last time and we felt like she needed to be there for her family. I will have to make it by myself for the time being, but I got to spend some time with Evelyn last night and the first part of today so I think I'll make it. We went to the St. Louis Zoo today and, despite the cold, had a lot of fun. Their bird house has a lot of birds that are different than the ones in Tulsa and the apes were all doing fun things for her to be amazed by. I have asked m'Lady to post pics and more details on the other blog. It is amazing and sad how much Evelyn learns and changes over two weeks while we are apart. She is a spectacular little person and I am looking forward to being home with her. She did very well coming to see her little brother today and just loved getting to see him again. She is going to take such good care of him as soon as he gets home to give her a chance to. Which brings us to the other little one...
Rowan has been on pressure support for a day and a half now, and even got the pressure (how much it helps with his breath) turned down and he is still breathing like a champ. This means he is one day closer to extubation, having one less tube doing something for him. He is awake a lot more and it will be nice to be able to read to him and actually know that he is paying attention to me instead of being zonked out. The only drawback to him being more awake is it seems like the tubes bother him more and he has been spitting up a lot more. They backed up on his feeds a little to help with that, so it is a bit of a one foot forward, one foot backward day. The foot going forward (breathing) will help him get the tube out, though. The tube coming out will make it to where he isn't laying down all the time and we can help him not spit up as much. So the foot backward will not stay behind for long. I think that might have been a terrible analogy, but try reading it a second time if you need to.
-Doc
Our son, Rowan, was born with Congenital Heart Disease and later diagnosed with Cystic Fibrosis. He had 2 open heart surgeries, 5 heart caths, and 2 additional surgeries. Realizing that despite fighting for him, Rowan was never going to get better and that he was hurting, we made the decision to change our fight from a long life, to a beautiful end to it. Hospice was a true gift and a beautiful time for our family. We said goodbye to our son when he was 7 months old.
Sweet Elle. I hope things calm down soon. Hooray for Rowan taking more steps in a positive direction. He's such a champ. :)
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