Doc guest post:
Well, Rowan went down for a repeat of his Gastrograffin enema and it was cancelled...because they took his diaper off and he just started pooping like crazy. That was about half an hour ago and they just brought him back, nurse says that he is still going now. What this means is for whatever reason, whether it was getting his medicines down enough, starting physical therapy, or some unknown whatever-the-heck was going on, his bowels are working like they should now.
Plan now is step 1: try the NuLytely (fluid through his NG tube to help flush things through) again. Step 2: Work up to feeding. Other steps thrown in: hopefully the fluid in his chest slows down/stops and that allows them to wean the ventilator again.
Apparently, he just likes to make things more interesting than they already would have been. In payback, it will make a good story to tell his girlfriends some day.
Our son, Rowan, was born with Congenital Heart Disease and later diagnosed with Cystic Fibrosis. He had 2 open heart surgeries, 5 heart caths, and 2 additional surgeries. Realizing that despite fighting for him, Rowan was never going to get better and that he was hurting, we made the decision to change our fight from a long life, to a beautiful end to it. Hospice was a true gift and a beautiful time for our family. We said goodbye to our son when he was 7 months old.
:) Yeah, it will make a great story! Bella did the same thing when we thought she had a bowel obstruction just after birth. Got her to the bigger hospital and she pooped all over their warming table.
ReplyDeleteIt's so good to hear he's taken a positive turn! Go Rowan!