Rowan is doing really well. They are continuing to wean him off of the respirator slowly. He is no longer receiving the "flush" for his system and is tolerating feeds through his NG tube well. He wakes up and looks at us and plays.
However, there is still no explaination for the fluid coming out of his chest tube. They aren't sure if it is coming from the area by his heart and lungs or if it is coming up from below his diaphram. There is a likely surgical fix to this, but deciding where the fluid is coming from is important for that to be successful. Today the doctors and surgeon are meeting to figure out what the best route is for determining the source.
Once we can sort out this chest tube fluid issue, we should be clear for actual recovery.
It will likely be a slow few days ahead with little to report, so remember...
No News is Good News
Our son, Rowan, was born with Congenital Heart Disease and later diagnosed with Cystic Fibrosis. He had 2 open heart surgeries, 5 heart caths, and 2 additional surgeries. Realizing that despite fighting for him, Rowan was never going to get better and that he was hurting, we made the decision to change our fight from a long life, to a beautiful end to it. Hospice was a true gift and a beautiful time for our family. We said goodbye to our son when he was 7 months old.
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