We've been in 7 West - a normal hospital ward for a few hours now and I swear Rowan is sleeping better and happier.
We can eat in this room. They let us give Rowan his medication. He only has to wear a blood pressure cuff when they are taking his blood pressure. He has no IV meds or IV food.
Life is pretty good!
He got to his new room and was greeted with a balloon and bear ensemble from his Aunt and Uncle.
We're adjusting to this new space nicely.
This morning we had our last experience 'rounding' with the doctors in the CICU. They were bitter sweet. We were so happy for Rowan's "Graduation Day" as Dr. Gazit put it. At the end of rounds, Dr. Gazit told us to "stay down there, okay?" (refering to the 'normal' unit). And we told him we hoped we never saw him again, in the absolute best way possible. What was really special is that when I thanked him for all he has done for our son, he told us that it was his pleasure. BUT, he didn't say it in the "I say this all the time and am just going through the motions" way at all. He truly and ernestly meant it. We have been so incredibly well treated and cared for. It's odd to feel sad to leave all the nurses, respitory therapists, doctors, and other staff that have made our time in the ICU so much more bearable. Human kindness is truly an amazing thing.
Our son, Rowan, was born with Congenital Heart Disease and later diagnosed with Cystic Fibrosis. He had 2 open heart surgeries, 5 heart caths, and 2 additional surgeries. Realizing that despite fighting for him, Rowan was never going to get better and that he was hurting, we made the decision to change our fight from a long life, to a beautiful end to it. Hospice was a true gift and a beautiful time for our family. We said goodbye to our son when he was 7 months old.
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