The tube came out...and it was like Rowan was being born again. All that anticipation and excitement to hear those little cries!
The doctors were very happy and surprised to hear him crying. Most kids won't be able to produce actual sound when they have been intubated for so long, but our little wolf had no trouble howling.
Physical therapy was able to sit him up to move him around. He got to get rid of his baby restraints. AND...
We get to hold him every day! EVERY DAY! WAHOO!
He's had the tube out for over 7 hours and is doing perfectly. We are so hopeful that he maintains this and continues to do well.
Wonderful Day!
Our son, Rowan, was born with Congenital Heart Disease and later diagnosed with Cystic Fibrosis. He had 2 open heart surgeries, 5 heart caths, and 2 additional surgeries. Realizing that despite fighting for him, Rowan was never going to get better and that he was hurting, we made the decision to change our fight from a long life, to a beautiful end to it. Hospice was a true gift and a beautiful time for our family. We said goodbye to our son when he was 7 months old.
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