Our son, Rowan, was born with Congenital Heart Disease and later diagnosed with Cystic Fibrosis. He had 2 open heart surgeries, 5 heart caths, and 2 additional surgeries. Realizing that despite fighting for him, Rowan was never going to get better and that he was hurting, we made the decision to change our fight from a long life, to a beautiful end to it. Hospice was a true gift and a beautiful time for our family. We said goodbye to our son when he was 7 months old.
Cardio conference was today.
The Plan:
Rowan goes home sometime this weekend (pending some minor fix up issues to his tech before he goes home)
Rowan is on oxygen while at home as needed.
Rowan’s medication that lowers pressures in the lung vessels is increased and hopefully lowers his oxygen requirement.
Rowan gets his Glenn in TULSA sometime this summer, likely June.
NO COMPLAINTS HERE!!!
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