Thursday, May 10, 2012

Not Great But Good Enough

AND WE WILL TAKE IT!

Rowan went to Cath at about 10:30 this morning.  We were called at about 12:30 and they notified us that everything went fine and they were moving Rowan to recovery.  The doc was “de-garbing” and would see us in about 10-15 minutes.

They were the longest 10-15 minutes turned 30-45 minutes I think I have ever tried to occupy myself.  Dr. Kimberling, Rowan’s cardiologist, brought new pictures of what Rowan’s heart looks like for us (which took a while to image up – thus the delay) and met us in Rowan’s room.

There are two numbers they look at with determining if someone is ready for/a candidate for the Glenn.

One they want to be under 16 and under 12 is ideal.  The other is under 3.0 and ideally under 2.0.  Rowan was 14 and 2.15.  His lungs were working just fine.  They are going to up the medicine that lowers those pressures even more just a tad to help lower that resistance.

We believe that Rowan needing oxygen and SATing a little lower is likely a combination of the pressures being slightly higher than ideal AND the fact that Rowan is a giant.

So tomorrow, the Tulsa surgery team is meeting to discuss their patients at noon.  Dr. Kimberling will present Rowan as a candidate for the Glenn and they will discuss and hopefully have a plan.  If the team here is comfortable, we will do his Glenn here in Tulsa.

BUT – we were in no way told no!  At worst, we may be looking at a “not yet”.  But there was no sign that his lungs are deteriorating…all leading to a fantastic

OH YEAH! GIVE IT TO THEM ROWAN!!! NOT GREAT BUT GOOD ENOUGH IS FAN-STINKING-TASTIC!!!

Rowan will very likely get his second surgery.  He came back from Cath extubated and has been hanging out in his room. 

Matt and I have been sort of stumped.  We are super happy/relieved/excited at the prospect of life with Rowan being long and happy…and yet feel like we need to sleep for about 3 days to get the tension out of us!

Yay Rowan!

Now we just have to get scheduled for surgery and have/recover from an open heart and go home!

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