Rowan just left for Cath. They are going to check his pressures as well as verify that he is structurally sound. If they encounter anything, the doc will call us to discuss any interventions necessary. This Cath will be accepted by St Louis as a pre-Glenn analysis. Hopefully, we can prove that Rowan is ready for his Glenn and get him on the surgery schedule soon. It should take a few hours.
Our son, Rowan, was born with Congenital Heart Disease and later diagnosed with Cystic Fibrosis. He had 2 open heart surgeries, 5 heart caths, and 2 additional surgeries. Realizing that despite fighting for him, Rowan was never going to get better and that he was hurting, we made the decision to change our fight from a long life, to a beautiful end to it. Hospice was a true gift and a beautiful time for our family. We said goodbye to our son when he was 7 months old.
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