THAT INVOLVES AN EIGHT HOUR PERIOD OF SLEEP AT NIGHT!!!!
Rowan may almost be 5.5 months old…but we finally will be able to sleep all night (provided he does)! We’ve been slowly adjusting medicine schedules to line them up better and Rowan’s schedule is so much more manageable now! See below!
6AM – meds and milk
8AM – shot
10AM – meds and milk
2PM – meds and milk
6PM – meds and milk
8PM – shot
10PM – meds and milk
After surgery – we are hoping the shots go away and he will be getting meds with meals and that is it!
So if we can now just get Rowan to actually SLEEP all night……
Our son, Rowan, was born with Congenital Heart Disease and later diagnosed with Cystic Fibrosis. He had 2 open heart surgeries, 5 heart caths, and 2 additional surgeries. Realizing that despite fighting for him, Rowan was never going to get better and that he was hurting, we made the decision to change our fight from a long life, to a beautiful end to it. Hospice was a true gift and a beautiful time for our family. We said goodbye to our son when he was 7 months old.
Yeah, let's see what he wants to do :). Good luck, mama!
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