Rowan is slowly becoming more and more unstable. Some of the time he is doing fantastic on very little oxygen. Others he drops low in his saturation numbers for about 10 minutes and no amount of oxygen will fix it. Then after 10 minutes he pops back up and is fine. He coughs more. He desats while he is sleeping sometimes…
The pulmonologist thinks his lungs are fine and from a respiratory standpoint he is doing fine. He is concerned that Rowan needs this heart repair sooner and can certainly not afford any delays and said that he would call the surgeons and talk to them to express his feelings that Rowan is fine from a respiratory standpoint and that his “incident” a few weeks ago wasn’t respiratory and was cardiac. Rowan will see the cardiologist on Friday to check up on him.
In the meantime…
Rowan’s oxygen needs to be adjusted a few times an hour. He needs to be on the monitor all the time. He smiles. He plays. He is building up strength…he just gets tired easily.
We have 13 days until surgery. We just have to make sure that we watch him closely for signs of sickness before surgery…
and so our watch begins.
You're doing such a great job, Elle. I remember that time between the Norwood and Glenn as being so touchy and worrisome. The Glenn was such a stability booster! Anything you need, just let me know. Did you know that I keep a blog too? Look at heartmamablog.com if/when you get a chance. Maybe Logan's post-Glenn will give you a bit of encouragement. Love to your sweet family, Amy
ReplyDelete