Monday, July 23, 2012

Fading

Rowan is slowly fading.  He is now awake less and less. He is comfortable. It’s nice to know we can guarantee that for him. We are still taking pictures and having special moments, but will probably not post anymore photos.  Rowan has turned rather blue/purple and as amazing as the moments with him are for us, we understand that they may not share the warm fuzzy feeling we have with others and might be too hard to look at.  So I will instead tell you about some of the special things that have happened lately.

Rowan took a few naps laying on my chest, which doesn’t normally happen because he HATED tummy time..and it was just too close to that.

Rowan likes being held, so we do that a lot.  Lots of snuggling.  Lots of kisses.

Rowan smiles at his Dad a lot.  All the time.  He has nothing but smiles for Doc.

Doc played piano for Rowan.  Rowan liked it.

We went on a “camping trip” in the living room.  Rowan slept most of it, but we did go “fishing” on a blue blanket for brown trout and catfish, make shadow puppets, tell scary stories (Evelyn’s favorite was one her Dad told about a road runner who was trying to escape from a scary coyote who ended up falling off a cliff), and eat s’mores.  We also watched the Jungle Book and then used a star projector to light up our ceiling and we sang songs.

And that brings me to last night…

Last night I had a dream.  I dreamt that someone (I’m going to call them Death..but I mean that more in the sense of a guide for Rowan) was sitting in one of our dining room chairs next to Rowan in his room.  They were talking to Rowan about how it was almost time to go.  Rowan was smiling and shaking his head no (which he does all the time). Death (who looked a lot like Alan Rickman as he was in Dogma) told him there were other places he had to go and other people he had to be with, so they  had to go soon.  I woke up feeling a little weirded out by it.  I went in to Rowan’s room…and right by the bed, Doc had put one of our dining room chairs.  Exactly where it was in my dream. At first I was pretty freaked out, but after relaxing a little, I realized that I felt comforted.  Rowan isn’t alone. In my mind there is someone with him, helping him get ready to leave our world. It’s a nice thought.

10 comments:

  1. What a crazy, yet nice dream. Like a secret reality that we can only see from a dream. (and I can appreciate that it was an Alan Rickman clone visiting)

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  2. Your family is daily on my mind. I can't help but think of Rowan and smile. You guys have given him such a full life... I just want to let you know I care. much peace and love to your sweet family.
    Erin McCrary

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  3. I don't know you personally but I love you and your son. Being a mom with a heart baby my heart goes out to you. My prayers are with you.

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  4. Thank you Elle and Matt for sharing Rowan with us through this blog. (and Evelyn too!) A special thank you for letting us in on your life especially to share in these last few beautiful days with Rowan. Rowan is a gift to us all and his life represents so many lessons for us to learn. Although I never had the pleasure to meet him on this earth, Rowan has entered my heart and here he will stay. And the love you have for him and each other is stronger than death. Rowan will never be far. My thoughts and prayers are with you and your beautiful family, Elle.

    Marty Coppage

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  5. Michael and I have been praying for you and your sweet family and I am truly sorry for what you are going through. Please know that we will be keeping you in our thoughts and prayers over the next few days as you say goodbye to your sweet baby boy.
    Laurel Palladino and Michael

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  6. What a wonderful mother you are...making sure to give both your children all you can through this terribly hard time. Rowan's journey in life has been just unfair and so sad....but he is surely blessed to have such a wonderful family. Im so sorry for all Rowan has had to undergo, and i wish that pain like this just didn't exist. Your family is in our constant thoughts and prayers.

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  7. Elle & Matt,
    Thank you for letting us sing for your beautiful family - what a blessing that I will cherish always.
    Peace to you all,
    Kristin

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  8. Elle, do you mind if I share your blog site with others? Your words are so inspiring.

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  9. Kristin, not at all! I created it to be shared, so please feel free.

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