Today Rowan’s BUN rose to 17 and his Creatin rose to .66. His kidneys are continuing to show signs of failure. He is also having trouble with constipation and is no longer tolerating food. He throws everything back up. They started him on IV fluids today to compensate some for the lack of food he is getting.
This evening they took his blood pressure. We want Rowan at 90/60ish. Rowan’s legs were 40/15 and his arms were 70/20. That’s too low. The thought is that the medicine he gets to make him less puffy, coupled with losing fluids by throwing up has significantly dehydrated him. They are turning up his fluids and we will wait to see if that works.
From a non-medical standpoint, Rowan seemed very calm most of today. He was upset when he threw up or gagged. He did have some time this afternoon where he smiled and played and was very responsive while I talked to him. I love those moments where I see him and for ten minutes, we are fine. Nothing is wrong. We’re just happy to see each other.
Evelyn spent some time with him at the hospital. She asked me to go see him this morning. After she started getting a bit antsy in the hospital room, we went to a nearby park. While she was up on a jungle gym, she looked down and suddenly got very scared. She froze and started crying and screaming for help. When I picked her up and got her down, she told me she wanted to go back and see Rowan again. So we did.
Early afternoon, Evelyn and I had a girl date. We went to buy some dresses. The last few days she LOVES dressing up and asks to be called “Princess Evelyn” so we went to the “Princess Store” (aka Disney Store) and picked up some dazzling shoes and pajamas.
We are hesitant this evening since Rowan’s blood pressures have been so low. Whether or not these things turn around is a big indicator in what our time left looks like.
We decided to take a break from the hospital for sanity’s sake and went home to spend time with Evelyn. When we got home, our house was spotless (including Evelyn’s nightmare of a room), our laundry was done and folded, dinner was in our refrigerator, and breakfast for several days was dropped off. Thank you so much to my amazing friends at JWI.
You have no idea how much your presence and aid means to us. It’s wonderful to get to be Rowan and Evelyn’s parents right now. To just rest at home so we can handle the emotional pounding the next day will bring. It truly made a giant difference in our day.
No comments:
Post a Comment